 |
Seems there's been a choice menu of updates of late about people having success with the treatment paths and management they have taken to minimise and in some case eliminate the impact of multiple sclerosis in their lives.
The first one is from a fellow retreatee(!) that as luck would have it, was on the same MS retreat that I attended at the Gawler Foundation a couple of years ago in regional Victoria with Professor George Jelinek. If you don't want to sit through Jelinek being a bit 'pig headed' himself then jump to the 3 minute 55 second mark to hear the sort of voice message that, I strongly suggest, we would all love to be able to leave. It's on a podcast over on George's 'Overcoming Multiple Sclerosis' webpage.
The next is from Episode 14 of Series 5 in the Australian ABC's science program, Catalyst that was broadcast here in Australia a couple of weeks ago. In it, they look at the likely connections with infection (and the successful treatment of a neurologist's wife with long term antibiotics) and then shift to examine vascular impediment (yes, treated effectively with CCSVI for some other ms-ers).
Additionally, the Catalyst program asks why some treatments and research get considered while others are dismissed or struggle for credence, acknowledging the power neurologists have in deciding which and what treatments get to be considered worthy treatments and worthy of research.
Even though there are common elements (and unknowns) regarding these particular three versions, the three takeaways for me in all these stories are:
1) neurologists wield disproportionate power;
2) no one size may fit all but there are more and more sizes to try (even if they may well be found to be cut from the same cloth);
3) getting snooty and dismissive of other sizes if we find a size that fits us personally may not be the most helpful of approaches for those still searching for 'their' size or for those who find themselves in the dangerous liminal territory of changing 'sizes'. Hmm...
 |
| Augusten Burroughs |
I say if it works for you - go for it! I am still searching for something that works for me.
ReplyDeleteLove your new shoe additions on the sidebar.
Yah, not having to undertake such a Galahad search that it starts to feel like a Holy Grail would be a relief says I :))
ReplyDeleteTwas hoping you would enjoy the latest inappropriate additions. Have to thank the keen-eyed Ms Ágota Sjöström for her choice guidance on the especially gnarly ones in this round :D
The Gawler Foundation congratulates anyone who has experienced success in managing multiple sclerosis or minimising the impact the illness has on their lives. The Gawler Foundation's Overcoming Multiple Sclerosis programs presented by Professor George Jelinek continue to be popular. The next Multiple Sclerosis healing retreat will be held in the picturesque Yarra Valley in Victoria from October 22 – October 26 2012.
ReplyDeleteThe Gawler Foundation helps people to be well. The Foundation works within an integrative, medical framework to provide resources, support and self-help techniques for people experiencing cancer, multiple sclerosis or other serious illnesses. The programs also offer lifestyle approaches to help clients achieve wellness, balance and optimal living. These lifestyle programs are based on nutrition, meditation, positivity and empowerment. For more information visit http://www.gawler.org/overcoming-multiple-sclerosis-healing-retreat-for-ms/
Pleasure m'am! I always try to keep an eye out for you. NOTHING has topped those babies though! xo
ReplyDelete