Seems there's been a choice menu of updates of late about people having success with the treatment paths and management they have taken to minimise and in some case eliminate the impact of multiple sclerosis in their lives.
The first one is from a fellow retreatee(!) that as luck would have it, was on the same MS retreat that I attended at the Gawler Foundation a couple of years ago in regional Victoria with Professor George Jelinek. If you don't want to sit through Jelinek being a bit 'pig headed' himself then jump to the 3 minute 55 second mark to hear the sort of voice message that, I strongly suggest, we would all love to be able to leave. It's on a podcast over on George's 'Overcoming Multiple Sclerosis' webpage.
The next is from Episode 14 of Series 5 in the Australian ABC's science program, Catalyst that was broadcast here in Australia a couple of weeks ago. In it, they look at the likely connections with infection (and the successful treatment of a neurologist's wife with long term antibiotics) and then shift to examine vascular impediment (yes, treated effectively with CCSVI for some other ms-ers).
Additionally, the Catalyst program asks why some treatments and research get considered while others are dismissed or struggle for credence, acknowledging the power neurologists have in deciding which and what treatments get to be considered worthy treatments and worthy of research.
Even though there are common elements (and unknowns) regarding these particular three versions, the three takeaways for me in all these stories are:
1) neurologists wield disproportionate power;
2) no one size may fit all but there are more and more sizes to try (even if they may well be found to be cut from the same cloth);
3) getting snooty and dismissive of other sizes if we find a size that fits us personally may not be the most helpful of approaches for those still searching for 'their' size or for those who find themselves in the dangerous liminal territory of changing 'sizes'. Hmm...